Science, Trust & Public Engagement: Genomics, Genetics and redesign of the Human Genetics Commission
Sciencewise-ERC funded project 2010-2011
Background
In response to the Comprehensive Spending Review and the review of arm’s length bodies, in October 2010 the Government agreed to reconstitute the Human Genetics Commission (HGC) as a Committee of Experts.
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Core Questions and Project Activities
Core questions for the review are as follows:
- How can the expert committee best provide advice on the social, ethical and legal implications around advances in genetics to the Department of Health in a timely and cost effective manner?
- How can stakeholder views be incorporated into the design and oversight of the new committee? How can such involvement be sustained?
Project Owners and Stakeholders
Department of Health
The Department of Health (DH) is the government department responsible for public health issues. DH is the project sponsor and will jointly fund the initiative with Sciencewise-ERC.
Human Genomics Strategy Group
The Human Genomics Strategy Group is a a cross-department working group and it will monitor the projects progress.
Involve
Involve are specialists in public participation and will be developing a dialogue toolkit from this project.
TNS-BMRB
BMRB provides public policy research and insight to government and not-for-profit clients, and are the dialogue contractor.